Disability Pride Parade

Today, Friday 2nd December, Adelaide held a Disability Pride Parade to celebrate International Day for People with Disabilities. Unfortunately we could not attend, therefore we all dressed up in purple to support the day.  

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“I get one bath a week, and I often sleep in my clothes” – Rebecca’s story

The system needs to change!!!! People that need help, are not receiving it!!

Scope's Blog

Guest post by Rebecca, who has ME and is a wheelchair user. She has lost her entitlement to social care, and now gets no support at all. Here she explains how it has affected her life.

Long hours stretch out in front of me. There’s nothing to fill my time. I cannot get out of the house. I may go many days without seeing anyone.

It’s a struggle even to have a drink; I certainly can’t get to the loo on time. I can only eat things which come straight from a packet.

If I ask for help to do something that isn’t directly about caring for my physical needs, I’m told it’s not possible. No one asks if I’m happy, or if I’d like a social life.

This is the situation I have faced ever since my care package was taken from me.

Losing my social care

I used…

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“I can’t get out of bed, or get dressed, most days”

Scope's Blog

New research released by Scope today reveals the extent of the social care crisis for disabled people who need support to do the basic things in life. Here are three of their stories.

Robert, 63, from Warwickshire, has very restricted mobility following an accident 15 years ago. He isn’t able to get out of bed, get dressed or prepare food without support, and is in a lot of pain. He’s currently entitled to 14 hours support a week.

Robert, a disabled man in his 60s, in bed.

In an ideal world, my support worker would come for two hours a day, and he would shower me and change my bedding, vacuum my room and stuff. But if you have a week like I had last week, where I had three hospital appointments, all my social care is used up on getting me to hospital. There’s no time left for everyday care.

If I’m on my own, I don’t have anything…

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T is for Tinder – #EndTheAwkward

Scope's Blog

Whether you’re looking for love or a one-time hook-up, Tinder and other dating apps are dominating the UK dating scene.

Mary Russell, star of Channel 4’s dating show, The Undateables, and blogger and student Holly Dunkley, talk about their first forays into the online dating scene.

T for Tinder is part of Scope’s A to Z of sex and disability.

Mary’s story

Before I did The Undateables or any other media work, I tried out a couple of dating websites. I never go on them now because it’s so hard to know who will be genuine or not, but at the time I was dipping my toe in the water.

My first mistake was not mentioning in my profile that I had dwarfism and I had decided not to include a photograph.

I started talking to a guy. His picture didn’t particularly attract me, but from the information in…

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‘You can walk, it’s a miracle!’ Umm, no I can’t. #EndtheAwkward

Scope's Blog

Lucy is an award-winning charity campaigner, blogger, and dog trainer. For our End the Awkward campaign, she describes the day she was told she could walk again… by a physiotherapist who failed to spot her wheelchair in the corner of a room.

I have Ehlers-Danlos syndrome. Instead of my collagen being like glue it’s like over-chewed chewing gum, or at worst wet tissue paper. It stretches, gets thinner and sometimes tears, but never resumes its normal shape.

As a result, my gut has failed, my bladder has failed and I can’t eat or drink anything at all. I’m attached to a pump 24 hours a day which pumps all my nutrition, fluid and medicines straight into a line in my heart.

In most cases, people with Ehlers-Danlos can lead fairly normal lives. I have a really severe form which has led to organ failure and life-limiting complications. Nobody knows…

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